Ethan Basch, MD, on the Importance of the Patient Journey to Clinical Trials
The Self Care Catalysts team had an insightful webinar with Dr. Ethan Basch, one of most renowned oncologists in the world for patient-centered care. He has become particularly well-known for his research published in JAMA, showing that cancer patients actually live longer and live better when they do something as simple as report on how they are doing. Based on these results, we’ll see a lot more engagement of patients in the years ahead, particularly during clinical trials. Many Pharma companies are moving in the direction of “digital trials”. Although clinical trials are a generally a slow industry to change, the increased access to data will ultimately mean trials that are less expensive, faster and more reliable.
Dr. Basch wrote about the need to include more data on patients feelings and how they are doing in the real world, at home, and in their daily lives in Nature this week, and in a webinar with Self Care Catalysts last week.
The old surveys and Patient Reported Outcomes will no longer be adequate on their own now that there is so much more data that can be gathered. We have and should use better sources of outcome information that comes from sources closer to a patient’s daily life, where it matters. Paper-based surveys suffer from recall bias and several other kinds of biases Dr. Basch describes. The fact is, we just don’t remember our experiences all that well a day later, much less a month or more later. We’ll soon see clinical trials capturing data directly from patients on a more regular basis. Dr. Basch is at the forefront of these efforts, so it’s well worth a listen to what he has to say to see where things are headed.